” The Role of Other Stakeholders in the Clinical Research Enterprise”

Myrl Weinberg, C.A.E.


National Health Council

“It is important not to view the stakeholders and the patients as distinct, potentially conflicting, parties. In fact, patients are the ultimate stakeholders of clinical research. A habit ingrained in many of our infrastructures and organizations is to give patients information, and perhaps survey them once in a while, but not to enter into an interactive and respectful dialogue. All decisions about plans, structures, what is paid for and how it is paid for must involve consumers/ patients/employees from the very beginning.”

Note the use of “patient”. As if clinical resarch was “therepy”.
I wonder how this would change the tone of this report if we called this patient a “commodity” instead? I understand this is quite common.

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