“Privacy and Confidentiality: As Related to Human Research in Social and Behavioral Science (Research Involving Human Participants V2) “

-Author(s): Joan E. Sieber

As social and behavioral research expands to involve diverse populations, contexts, and sensitive topics, it raises many complex issues of privacy and confidentiality. These issues go beyond what is contained in textbooks or known to most researchers and Institutional Review Board (IRB) members. The literature on these issues is found in a variety of applied research publications in applied statistics, program evaluation, criminology, education, economics, and demography, but not in the mainstream social science literature. Understanding and solving some of these problems requires knowledge and resources that can be found via major research libraries, but only if one knows what to look for. IRBs cannot be expected to generate and disseminate the needed resources and body of knowledge on their own, though many have made a remarkable start in this direction.”

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