Fear and Loathing in Bioethics-Carl-Tuesday, April 30, 2013
“It has been over a month since I filed Data Practices Act requests to the U for the Continuing Review documents for the CAFE and CATIE studies. My previous requests for documents have resulted in answers of 1) We destroyed those documents; 2) We can’t let you have those documents; and 3) We can’t find those documents. Anyone want to guess the strategy the U will use to stonewall this latest request?”
“Certificates and Assurances of Confidentiality”
“Certificates of Confidentiality are issued by the Centers for Disease Control and Prevention (CDC) to protect the privacy of research subjects by protecting investigators and institutions from being compelled to release information that could be used to identify subjects with a research project. Certificates of Confidentiality are issued to institutions or universities where the research is conducted. They allow the investigator and others who have access to research records to refuse to disclose identifying information in any civil, criminal, administrative, legislative, or other proceeding, whether at the federal, state, or local level.”
” Identifying information is broadly defined as any item or combination of items in the research data that could lead directly or indirectly to the identification of a research subject.
By protecting researchers and institutions from being compelled to disclose information that would identify research participants, Certificates of Confidentiality help achieve the research objectives and promote participation in studies by assuring privacy to subjects.”
Certificates of Confidentiality would also help to achieve a precipitous lack of a Grand Jury that would serve to protect the subjects of research.
By protecting researchers and institutions from being compelled to disclose information that would identify research participants, Certificates of Confidentiality help achieve avoidence of institutional and individual liability.
(I’m catching up on Duckspeak)
“An example of a skillful duckspeaker in action is provided in the beginning of chapter 9, in which an Inner Party speaker is haranguing the crowd about the crimes of Eurasia when a note is passed into his hand; he does not stop speaking for a moment, or change his voice or manner, but (according to the changed party line) he now condemns the crimes of Eastasia, which is Oceania’s new enemy.”
“ Ultimately it was hoped to make articulate speech issue from the larynx without involving the higher brain centres at all. This aim was frankly admitted in the Newspeak word duckspeak […]. Like various words in the B vocabulary, duckspeak was ambivalent in meaning. Provided that the opinions which were quacked out were orthodox ones, it implied nothing but praise, and when the Times referred to one of the orators of the Party as a doubleplusgood duckspeaker it was paying a warm and valued compliment. ”
—Orwell, Nineteen Eighty-Four