“Hospital patient privacy sacrificed as state agency sells or gives away data”
By Suzanne Batchelor-Reporting on Health
“Data security experts have discredited de-identification as a privacy method for medical records and other personal information, but the Texas health department (Texas Department of State Health Services) has sold and given away Texas hospital-patient data since 1999 using de-identification. The agency even sells exact patient data, including date of birth, to those passing a committee review of their “research project.” Such data is not restricted to university or healthcare center researchers.
Data buyers such as lobbyists, trade groups, consultants and other for-profit companies have bought the Texas hospital patients’ data. Companies such as Practice Fusion (now partnering with Dell Computer to provide electronic medical records software) profitably re-sell electronic medical data; it’s a thriving industry.
Patient-privacy advocate Deborah Peel, M.D., describes the “research loophole” in HIPAA. Texas civil rights attorney Jim Harrington said releasing patient data without consent violates Constitutional privacy rights. “
Guidance on Engagement of Institutions in Human Subjects Research
“Research is defined in 45 CFR 46.102(d) as follows:
“Research means a systematic investigation, including research development, testing and evaluation, designed to develop or contribute to generalizable knowledge. Activities which meet this definition constitute research for purposes of this policy, whether or not they are conducted or supported under a program which is considered research for other purposes. For example, some demonstration and service programs may include research activities.”
Human subject is defined in 45 CFR 46.102(f) as follows:
Human subject means a living individual about whom an investigator (whether professional or student) conducting research obtains
1. (1) data through intervention or interaction with the individual, or
2. identifiable private information.
Intervention includes both physical procedures by which data are gathered (for example, venipuncture) and manipulations of the subject or the subject?s environment that are performed for research purposes. Interaction includes communication or interpersonal contact between investigator and subject. Private information includes information about behavior that occurs in a context in which an individual can reasonably expect that no observation or recording is taking place, and information which has been provided for specific purposes by an individual and which the individual can reasonably expect will not be made public (for example, a medical record). Private information must be individually identifiable (i.e., the identity of the subject is or may readily be ascertained by the investigator or associated with the information) in order for obtaining the information to constitute research involving human subjects.
Institution is defined in 45 CFR 46.102(b) as any public or private entity or agency (including federal, state, and other agencies).
For purposes of this document, an institution?s employees or agents refers to individuals who: (1) act on behalf of the institution; (2) exercise institutional authority or responsibility; or (3) perform institutionally designated activities. ?Employees and agents? can include staff, students, contractors, and volunteers, among others, regardless of whether the individual is receiving compensation.”
Is there a relationship between a fad diagnosis and the grant money?
Dr Richard Noll from Wikipedia
“Criticism of American Psychiatry’s Complicity in the 1980s Satanism Moral Panic”
“He was an early public critic of the American psychiatric profession?s complicity in the Satanic ritual abuse moral panic of the late 1980s and early 1990s. “Except for the work of very few mental-health professionals, such as psychologist Richard Noll and psychiatrists George K. Ganaway and Frank W. Putnam, what little psychiatric writing has emerged on survivors and their therapy has uncritically embraced the literal truth of survivors’ claims.”
At the invitation of psychiatrist and researcher Frank Putnam, then the Chief of the Dissociative Disorders Unit at the National Institute of Mental Health, Noll was one of four members on a plenary session panel that opened the 7th International Conference on Multiple Personality/Dissociative States in Chicago on 9 November 1990. In a ballroom filled with television cameras and more than 700 conference participants (including feminist intellectual Gloria Steinem, who was a firm believer in the veracity of “recovered memories” of satanic ritual abuse) the members of the panel presented, for the first time in a public professional forum, a skeptical viewpoint concerning SRA reports. The panel cast doubt on the corroborating evidence for the thousands of claims from patients in treatment that they were recovering memories of childhood abuse at the hands of persons (often family members) who were members of satanic cults. Such satanic cults were claimed to be intergenerational in families and had been abusing and ritually sacrificing children in secret for almost 2000 years. When American psychiatrists published purported historical evidence supporting these beliefs in the peer-reviewed journal Dissociation in March 1989, Noll challenged their extraordinary claims in a subsequent issue. His December 1989 conclusion that SRA beliefs were “a modern version of (a) paranoid mass delusion — and one in which all too many clinicians and law enforcement officials also share” was the first unambiguous skepticism of the moral panic to be published in a medical journal. Noll continued his public skepticism elsewhere. Noll’s 1990 panel presentation was an elaboration of this earlier published critique. Other members of the 1990 conference panel were anthropologist Sherrill Mulhern and psychiatrist George Ganaway.
Noll?s participation on the panel was viewed by SRA believers as part of a deliberate disinformation campaign by Frank Putnam, who was skeptical of the reality of satanic cults. This set Putnam apart from other prominent American psychiatrists who were true believers, such as conference organizer Bennett G. Braun, a member of the Dissociative Disorders work group for the American Psychiatric Association’s diagnostic manual, DSM. According to an account based on interviews, “conference attendees characterized (Noll) as a professional expendable who had no idea he was being used. Through him, they contended, Putnam could cast doubt on the contentious issue of linking MPD to ritual abuse.” However, Noll’s skeptical presentation did have an effect: “Mulhern and Noll cut a line through the therapeutic community. A minority joined them in refusing to believe sacrificial murder was going on; the majority still believed their patients’ accounts.”
From US Government Grants dot net
“Nonprofit Faith Based Grants
Despite an all-out effort on the part of the President to create a level playing field for faith based organizations to apply for and receive faith based grants, many faith based grants go to non-faith based community organizations.
One of President Bush?s first official acts as President was to create the White House Office of Faith-Based and Community Initiatives. At its inception the Office was tasked with strengthening and expanding the role of faith-based and community organizations in addressing the nation?s social problems through faith based grants. The President envisioned a faith-friendly public square where faith-based organizations could compete equally with other groups to receive faith based grants. Centers for Faith-Based and Community Initiatives were also established in seven cabinet departments ? the United States Department of Justice, Agriculture, Labor, Health and Human Services, Housing and Urban Development, and Education and the Agency for International Development. Priority areas for federal faith based grants include:
* Homeless and hungry
* Substance abusers
* Those with HIV/AIDS
* Welfare-to-work families
To find out more about federal faith based grants visit http://www.hhs.gov/partnerships/, http://www.grants.gov, orwww.fedbizopps.gov. There are many free grant writing courses available by federal agencies to learn how to apply for grants.
U.S. Government Grants provides grant writing training that goes beyond the training provided by the federal government for organizations to receive faith based grants. Each faith based organization that attends a U.S.G.G. Workshop receives a list of at least 100 potential prospects.
For years, churches have played a vital role in assisting people in need. Unfortunately, many churches do not qualify for faith based grants because they do not have a separate 501(c)(3) organization. U.S. Government Grants provides training for churches on how to set up faith based 501(3)(c) organizations. A step-by-step instruction book is available for purchase at a price of $500 which includes 1 hour of consultation services, sample forms and templates. If you prefer, USGG. will complete all paperwork and file your application with the I.R.S. for $2,000. State and federal filing fees range between $10 and $750.
By obtaining the 501(c)(3) status with the I.R.S. faith based organizations become eligible for grants from private foundations, as well as from federal, state, and local governments. In the U.S. there are over 2,200 private foundations that are interested in giving grants to Christian organizations and agencies, and thousands more that give grants to faith based 501(c)(3) organizations to provide programs that run the gamut from A-Z, including abuse prevention, aging, AIDS, child development, family services, food distribution, health care, homelessness, human services, housing, mental health, music, Native Americans, performing arts, substance abuse, women, youth development, and zoos. The DeMoss Foundation, Huntsman Foundation, Stewardship Foundation, Bonner Foundation, and Bolthouse Foundation all give grants nationally to Christian organizations and agencies. Other foundations that provide grants nationally to faith based organizations include the Heritage Mark Foundation, Davis Family Foundation, Mustard Seed Foundation, Generation Trust, Rushing Wind, Ltd. and many more. A great resource for learning about faith based grants from private foundations is the Foundation Directory.”
“If only it were all so simple! If only there were evil people somewhere insidiously committing evil deeds, and it were necessary only to separate them from the rest of us and destroy them. But the line dividing good and evil cuts through the heart of every human being. And who is willing to destroy a piece of his own heart?” Aleksandr Solzhenitsyn