“Don’t count on federal officials to protect research subjects”

“Fear and Loathing in Bioethics”

Thursday, August 29, 2013 Carl Elliot
http://loathingbioethics.blogspot.com/2013/08/dont-count-on-federal-officials-to.html

Hospital patient privacy sacrificed as state agency sells or gives away data
Technology used by for-profit companies strips away inadequate layers of security
The Austin Bulldog
Thursday, September 30, 2010 – 5:00pm

“DSHS Texas Health Care Information Collection and state law
he Texas Health and Safety Code regulates the Texas Health Care Information Council and sets forth the provisions for dissemination, confidentiality, and general access to hospital discharge data in the Public Use Data File.

Section 108.013 of the code specifically prohibits the release of or access to any data “that could reasonably be expected to reveal the identity of a patient.” Confidentiality violations include criminal penalties. The code even states that data on patients, and compilations that are produced from data that identify patients, are not subject to discovery, subpoena, or other means of legal compulsion for release to any person or entity except as provided by the code, and such data is not admissible in any civil, administrative, or criminal proceeding.”
http://www.reportingonhealth.org/fellowships/projects/hospital-patient-privacy-sacrificed-state-agency-sells-or-gives-away-data

The one binding key in the research complex. The one practise that could reform the whole system would be to start here.
Make a difference?
https://www.change.org/petitions/governor-mark-dayton-of-minnesota-investigate-psychiatric-research-misconduct-at-the-university-of-minnesota-2
http://www.alltrials.net/
http://www.lindalliance.org/
https://www.change.org/petitions/richard-gonzalez-of-abbvie-and-daniel-welch-of-intermune-drop-your-legal-action-blocking-access-to-ema-clinical-trial-data
https://www.rxisk.org/Default.aspx

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